{"id":1897,"date":"2022-12-19T00:00:00","date_gmt":"2022-12-19T00:00:00","guid":{"rendered":"https:\/\/www.ralarsa.com\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\/"},"modified":"2025-09-18T14:20:07","modified_gmt":"2025-09-18T13:20:07","slug":"ralarsa-asociacion-hiperplasia-suprarrenal-congenita","status":"publish","type":"post","link":"https:\/\/www.ralarsa.com\/ca\/ralarsa-associacio-hiperplasia-suprarenal-congenita\/","title":{"rendered":"Ralarsa i l’Associaci\u00f3 Hiperpl\u00e0sia Suprarenal Cong\u00e8nita"},"content":{"rendered":"

<\/p>\n

Enguany en Ralarsa col\u00b7laborem amb l’Associaci\u00f3 Espanyola d’Hiperpl\u00e0sia Suprarenal Cong\u00e8nita (AEHSC) per a fer costat a la lluita de malalties minorit\u00e0ries. Del 19 de desembre de 2022 fins al dia 05 de febrer del 2023 donarem 1 euro per cada servei de reparaci\u00f3 i substituci\u00f3 de llunes sol\u00b7licitat a trav\u00e9s del nostre demanar cita de la p\u00e0gina web.<\/strong><\/p>\n

La Hiperpl\u00e0sia Suprarenal Cong\u00e8nita (HSC) engloba tots els trastorns hereditaris de la s\u00edntesi de cortisol en les gl\u00e0ndules suprarenals, i t\u00e9 afectacions en el creixement dels menors, i en casos greus pot causar fins i tot la mort.<\/p>\n

La AEHSC \u00e9s una associaci\u00f3 que treballa per a millorar la vida de pacients afectats per aquest trastorn, i fer costat a les fam\u00edlies. Cerca la col\u00b7laboraci\u00f3 de professionals m\u00e8dics per a augmentar la consci\u00e8ncia d’aquesta comunitat cap a aquesta malaltia i aconseguir els m\u00e0xims fons per a la recerca en millors cures i tractaments.<\/p>\n

Es consideren malalties minorit\u00e0ries les que tenen una prevalen\u00e7a de 1:2000 o inferior. El percentatge en HSC \u00e9s d’1.18.000 nascuts malalts, a Espanya en 2020 van n\u00e9ixer 339.206 nens dels quals naixerien 19 nens malalts.<\/p>\n

Donacions per cada demanar cita de la nostra web<\/u><\/strong><\/p>\n

Per a aportar el nostre granet de sorra enguany ens hem proposat el repte d’aconseguir com a m\u00ednim 3.000 euros per a poder donar-ho a aquesta associaci\u00f3.<\/p>\n

La durada de la campanya ser\u00e0 des del 19 de desembre de 2022 fins al dia 05 de febrer del 2023. Aquesta campanya solid\u00e0ria consistir\u00e0 a donar 1 euro per cada servei de reparaci\u00f3 i substituci\u00f3 de llunes sol\u00b7licitat a trav\u00e9s del canal del demanar cita de la nostra p\u00e0gina web.<\/p>\n

Ajuda’ns a triar el projecte solidari!<\/strong><\/p>\n

L’objectiu \u00e9s aconseguir aquests 3.000 euros i donar-los a un projecte en concret de la AEHSC. Per\u00f2, per a triar el projecte necessitem la vostra col\u00b7laboraci\u00f3, per la qual cosa hem habilitat una enquesta perqu\u00e8 puguis seleccionar a quin projecte destinem el total recaptat.<\/p>\n

Punxa aqu\u00ed<\/strong> <\/a>i selecciona el projecte en el qual vols que aportem el nostre granet de sorra.<\/p>\n

Reserva la teva cita i col\u00b7labora amb l’Associaci\u00f3 Espanyola d’Hiperpl\u00e0sia Suprarenal Cong\u00e8nita!<\/u><\/strong><\/p>\n

I \u00e9s que, a m\u00e9s d’augmentar la teva seguretat vi\u00e0ria, en fer la reparaci\u00f3 o substituci\u00f3 de llunes estar\u00e0s ajudant al fet que aquesta fundaci\u00f3 sense \u00e0nim de lucre faci m\u00e9s senzill el cam\u00ed i acompanyi tant als nens com a les seves fam\u00edlies.<\/p>\n

Fes la teva reserva ara i dona suport a aquest bonic projecte.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"Enguany en Ralarsa col\u00b7laborem amb l’Associaci\u00f3 Espanyola d’Hiperpl\u00e0sia Suprarenal Cong\u00e8nita (AEHSC) per a fer costat a la lluita de malalties minorit\u00e0ries. Del 19 de desembre de 2022 fins al dia 05 de febrer del 2023 donarem 1 euro per cada servei de reparaci\u00f3 i substituci\u00f3 de llunes sol\u00b7licitat a trav\u00e9s del nostre demanar cita de…","protected":false},"author":1,"featured_media":2396,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[14],"tags":[15],"class_list":["post-1897","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ralarsa-cary-group","tag-ok"],"acf":[],"yoast_head":"\nRalarsa i l'Associaci\u00f3 Hiperpl\u00e0sia Suprarenal Cong\u00e8nita - Ralarsa<\/title>\n<meta name=\"description\" content=\"Enguany en Ralarsa col\u00b7laborem amb l'Associaci\u00f3 Espanyola d'Hiperpl\u00e0sia Suprarenal Cong\u00e8nita (AEHSC) per a fer costat a la lluita de malalties minorit\u00e0ries.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ralarsa.com\/ca\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ralarsa i l'Associaci\u00f3 Hiperpl\u00e0sia Suprarenal Cong\u00e8nita\" \/>\n<meta property=\"og:description\" content=\"Enguany en Ralarsa col\u00b7laborem amb l'Associaci\u00f3 Espanyola d'Hiperpl\u00e0sia Suprarenal Cong\u00e8nita (AEHSC) per a fer costat a la lluita de malalties minorit\u00e0ries.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ralarsa.com\/ca\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\/\" \/>\n<meta property=\"og:site_name\" content=\"Ralarsa\" \/>\n<meta property=\"article:published_time\" content=\"2022-12-19T00:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-18T13:20:07+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/ralarsa.s3.eu-central-1.amazonaws.com\/wp-content\/uploads\/2025\/03\/9799.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1024\" \/>\n\t<meta property=\"og:image:height\" content=\"683\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"ralarsa_admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrit per\" \/>\n\t<meta name=\"twitter:data1\" content=\"ralarsa_admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Temps estimat de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minuts\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/\"},\"author\":{\"name\":\"ralarsa_admin\",\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/#\\\/schema\\\/person\\\/cc6cd8ee6652131e9e8872b5cb9424fb\"},\"headline\":\"Ralarsa i l’Associaci\u00f3 Hiperpl\u00e0sia Suprarenal Cong\u00e8nita\",\"datePublished\":\"2022-12-19T00:00:00+00:00\",\"dateModified\":\"2025-09-18T13:20:07+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/\"},\"wordCount\":1232,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/d2oyvx818ubhz6.cloudfront.net\\\/wp-content\\\/uploads\\\/2025\\\/03\\\/9799.jpeg\",\"keywords\":[\"ok\"],\"articleSection\":[\"Ralarsa & Cary Group\"],\"inLanguage\":\"ca\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/www.ralarsa.com\\\/es\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.ralarsa.com\\\/ca\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/\",\"url\":\"https:\\\/\\\/www.ralarsa.com\\\/ca\\\/ralarsa-asociacion-hiperplasia-suprarrenal-congenita\\\/\",\"name\":\"Ralarsa i l'Associaci\u00f3 Hiperpl\u00e0sia Suprarenal Cong\u00e8nita - 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